So I really wish that I could say things have improved since Monday but they really haven’t change any, everyday is a struggle at the moment and it is really hard to keep carrying on. I know a lot of the things that I am feeling are due to the steroids and lack of sleep but it doesn’t make it any easier.
I think the reason why I am finding it so hard is because finally after 3 years my oesophageal stricture has improved and I was really looking forward to the day that it would become better because it meant that I would be able to get my life back to some normality but now that I have this flare up in my bowel it means that I am back to square one again and goodness knows how long it is going to take to settle down again.
Keep Strong, Keep Fighting, Crohnie Love :-) x
So since my last diary entry things have been really bad to the point that I thought I was losing my mind.
As you all know if you read my last entry, I started taking steroids last Wednesday and in evening I started to feel depressed but them over the next few days I became so severely depressed and my head was spinning, I think the best way to describe it is manic depression. I have taken steroids many times since I was diagnosed with Crohn’s 13 years ago but I honestly say that I never ever felt like that before. The only difference this time round is I am taking antidepressants and I have never taken them before when I have been on steroids so I am starting to wonder if the two medication’s are interacting with each other.
Now onto to the good thing that has happened in my life, I am still able to eat solid food!!!!!! It is four weeks past Friday since I had my last oeosphageal dilation and I cannot believe it has stayed open for so long, I can honestly not remember the last time I was able to four weeks.
Keep Strong, Keep Fighting, Crohnie Love :-) x
So since Thursday nothing has really changed that much I am still running a temperature and I still have an upset stomach but I now have another problem to add to the others. On Friday when I changed my wound dressing I discovered a puss spot, normally I wouldn’t be too worried by a spot but this spot is dipped in the way instead of raised which is a bit concerning.
I wrote in my last diary entry that I had phoned the IBD nurse but she never phoned me back on the Friday. If she doesn’t phone I have decided to phone my GI consultant’s secretary, so hopefully I will be able to get things sorted tommorow.
Keep Strong, Keep Fighting, Crohnie Love :-) x
So I haven’t wrote anything in a week and a half but I am finding it really hard to write at the moment, I don’t know if it is because of the January blues or if it is because I am having a flare up.
2013 has not really got off to the best of starts last week I start to develop stomach pains but because there is so many bugs going around I thought I might have just picked up one. Now it is a week later and things haven’t settled down, my stomach is sore, I am going to the toilet more and I keep getting temprature’s. This is my first big flare since I had my operation to form my illeostomy 3 years ago so I suppose I have been pretty lucky compared to other suffer’s and I feel that I shouldn’t complain about it.
I phoned the IBD nurse today but nobody answered so I left a message, I hope I don’t have to go into hospital, I really, really, really hate hospital’s.
Keep Strong, Keep Fighting, Crohnie Love :-) x
Happy New Year everyone! I hope you all had a very healthy hoilday season.
Christmas was brilliant this year, I finally was able to Christmas dinner for the first time in three years. I was so grateful that I was able to join my family at the dining room table because for the past few years I felt so left out unfortunately I wasn’t able to eat as much as everyone else but it didn’t matter. I didn’t really do much for New Year Eve because I was just so tired after being busy over the Christmas but I can’t wait to see what this year brings because ever since I had my last big operation in 2010 each year gets better and better.
Keep Strong, Keep Fighting, Crohnie Love :-) x
So I got my oeosphageal dilation on Friday which means I will be getting my Christmas dinner this year, the first in 3 years. It all went well apart from when I woke up from the anesthetic, I ended up burping really badly and then I started hiccupping which has never happened before.
On Saturday I got discharged at dinner time and then went to Asda to get some food because I didn’t have any in the house because I refuse to buy food until I know that the dilation has been a success. Asda was an absolute nightmare because everyone was trying to get there Christmas food shopping done but I was really lucky and managed to get everything that I got on my list.
Sunday was just a quiet day at home because I needed to rest so I just watched some Christmas films to get me in the festive mood.
Keep Strong, Keep Fighting, Crohnie Love. :-) x
Hi guys, I hope you are well. I am so sorry everyone for not doing any diary entries this week but it has just been so busy but today I am going to one covering the whole week.
So if you saw my last blog post I said that I had to go to the hospital 3 times this week but I only actually went once. I decided to cancel my appointment on Monday with stoma and tissue viability because I felt that having to go to 3 appointments would be to much plus my 4 year old wound wasn’t really the main priority.
On Wednesday I went to my maxillofacial appointment for my assessment, so I had an x-ray done of my teeth and despite it showing a lot of tooth decay I only need to get 3 teeth out. The plan is to remove one tooth at the moment and see how well it heals up and if I have no problems they will go ahead and remove the other 2 teeth. So after being at the appointment I decided to go into town to get a few things that I still needed to get for Christmas but I couldn’t find anything I was looking for which was very frustrating so I ended up buying some more makeup to cheer me up.
On Friday I was going to be having an oesophageal dilation done but on the Thursday evening at 5pm I got a phone call from a radiographer to say that the secretary had put on me on the wrong list and that I wouldn’t be getting my oesophagus dilated. The radiographer did say they would reschedule it for Friday the 21st but it’s the last Friday before Christmas so I will be really amazed if it isn’t cancelled again.
Keep Strong, Keep Fighing, Crohnie Love :-) x
So I have been feeling really tired this weekend so I have just spent it resting, I think those bad few days that I had this week took a lot out of me. Another reason why I didn’t want to do anything this weekend is because I have go the hospital 3 times this week. I have a wound check tomorrow with the stoma and wound nurse, on Wednesday I have an appointment a maxillofacial and then on Friday I am getting another oesophageal dilation. I hate these type of week’s because it’s all focus on health and health problems and I don’t like to spend that much time on focusing on what is wrong with me because that is what causes my depression to become worse again.
Keep Strong, Keep Fighting, Crohnie Love :-) x
So on Wednesday morning I woke up to a covering of snow which I was so happy about but a lot of people weren’t, for example my sister who I had to look after because there was no transport. Wednesday was another housework day so I dusted my bedroom and changed the bed, I am pretty surprised I was able to do it because I only got two hours sleep on Tuesday night.
Thursday was a very rubbish day I woke up with the most terrible stomach ache my ileostomy was going crazy, which meant I was struggling to keep hydrated and on top of that I also felt really sick and had a sore head. I not 100% sure if it is a crohn’s flare or if it’s because I did so much the day before. I really hope I feel better tomorrow because I have a really busy week next week.
Keep Stong, Keep Fighting, Crohnie Love. :-) x
So Monday was just spent doing the housework so it was a pretty uneventful day but Tuesday was an eventful because I felt unwell. I had a really sore head which I think is due to the rotten teeth that I need pulled out but I also had a sore stomach and my oesophagus felt like it was on fire, I really hope that is not the beginning of a massive flare up because that is the last thing that I want to happen at this time of year.
Keep Strong, Keep Fighting, Crohnie Love :-) x
